“War is not won alone”
At first, I had no idea what I was going to write about for this post. Not one clue. Then, I read a blog post from a fellow student, and I was inspired. After reading her story, I decided that I wanted to share my own story. The story is long, so buckle up and enjoy the ride.
It all started the summer after sixth grade, so the summer of 2015. I was visiting my new family doctor for the first time because I was feeling under the weather. Everything seemed to be going smoothly. She said that I had a fever and a stomach virus, and she gave me the medicine to treat the stomach virus. Then she asked me if I had scoliosis. I gave her a weird look because I had never heard that word before. She explained to me that scoliosis is a curvature of the spine and that it is very common. She checked my back and was almost certain that I had scoliosis, but just to be safe, she sent me to consult with a specialist and to get x-rays taken.
The specialist told me that I did in fact have scoliosis, Adolescent Idiopathic Scoliosis to be exact. Simply put, scoliosis is a curvature in the spine. I had two curves in my spine (double the fun!) that made it look like a backwards letter S. In my first x-ray, the top curve was around 30 degrees, and the bottom one was about 20 degrees. This meant that my scoliosis wasn’t too bad, and that I didn’t have much to worry about… yet.
After meeting the specialist that we were sent to, my family and I visited other specialists for second and third opinions. I met a doctor from CHOC Hospital who I really liked. His name is Dr. Aminian. We went back and forth between the original specialist and Dr. Aminian.
At my next appointment, my back jumped from 30 and 20 degrees to 50 degrees (top curve) and 30 degrees (bottom curve). My parents were extremely confused and worried. They didn’t understand because at the last appointment, the doctor said that we wouldn’t have to worry. My mom started crying. Dr. Aminian recommended for me to get a brace, and the originally specialist seemed slightly apathetic to the situation. This is when I decided that I would no longer be visiting the original specialist. Dr. Aminian was now my only doctor for my spinal needs.
After being sent to ANOTHER specialist to get fitted and measured for a brace, I had to actually wear the brace. I hated that stupid back brace. 
The brace wasn’t meant to cure my scoliosis. There are rare cases where the brace will actually straighten the spine, but once the spine is past 50 degrees, the brace won’t be able to do much besides slow the curving process down.
I wore it for 23 hours out of the 24 hours in a day. I was only allowed to take it off when I showered. I lived, ate, and slept in a back brace my entire seventh grade year. There were times where I would be a typical rebellious pre-teen and take the brace off, but other than those rare occasions, I was stuck. Some days were worse than others. Some days I would cry tears of frustration because I was so uncomfortable, and other days the brace didn’t seem so bad.
By the summer of 2016, my spine didn’t show any promise. The curves continued to worsen, and I was getting more frustrated of my brace every passing day. I had enough. After many appointments and long talks, Dr. Aminian, my family, and I decided to go with surgery. The surgery was a spinal fusion with instrumentation. Bascially, they were going to open up my back, attach metal rods to my spine, and straighten the rods which would straighten my spine. In addition to the metal rods and screws, my spine was fused together to ensure that the spine wouldn’t curve again.
At first, I really did not want the surgery because I had hopes of joining the cheer team in high school. I had been working on my flexibility and skills, and if I had the surgery, all of that work would have been for nothing. Eventually, I realized that I needed this surgery and I really didn’t have any other choice. It was tough, but I got over it. I still love cheer to this day.
Finally, it was the big day. June 28th, 2017. My surgery was scheduled for 7:00 AM, and my mom, dad, sister, and I were at the hospital by 5:00 AM. My last memory from before the surgery is the anesthesiologist giving me the anesthesia through my IV in the pre-op room. However, my family said that I was awake and talking to them the entire time. They even said that I waved goodbye to them as I was being rolled away into the operation room.

The first few hours after waking up after the surgery are a blur. I barely remember anything besides being very thirsty and pushing the red button that would provide me with pain medicine. After I had regained awareness, the physical therapist walked in and told me it was time to start walking. Yup. Walking.
I never knew getting out of a bed could be so difficult. All I had to do was sit up on the side of the bed, walk to the door, sit down in a chair, and then I could get back in bed and sleep.
I was doing really well and was recovering quickly, so I got to go home on July 1st. I spent most of my time at home binge watching The Flash on Netflix. Things were going fine until the night of July 8th.
My stomach started to hurt so much. I can easily say that that was the most pain I have ever been in. I was given a packet when I was discharged, and the packet said to report back to CHOC Emergency Room immediately if I ever felt any strong abdominal pains.
My dad drove me, my mom, and my sister to the hospital at 12 AM. In the emergency room, I was vomiting my brains out (sorry if that was TMI). I had an NG tube put in to empty my stomach, and the doctors took an MRI of my abdomen. They found out that I had acquired SMA Syndrome and Pancreatitis. These were both side effects of the surgery. Pancreatitis was easily treated with medication and a low-fat diet, but SMA Syndrome was a little more complex.
I was readmitted to the hospital, and Dr. Aminian consulted with a gastrointestinal (GI) specialist to discuss treatment options. For the first few days I wasn’t allowed to eat, but I still had to keep in my NG tube. I was being fed through my IV, and it was hard to talk because of the NG tube. Once I was allowed to eat, I would have to get on all fours after finishing my meal. This was the treatment that the GI specialist came up with. His theory was that as the food was being digested, it would push against the artery blocking my small intestine, clearing the obstruction.
His plan worked, and I was able to eat without vomiting afterwards! I still couldn’t talk much because of the NG tube, but something that really lifted my mood was the therapy dog program they have at CHOC. A couple of dogs visited me throughout my stay, and they never failed to bring a smile to my face.

I can’t say I didn’t have a little bit of fun during my stay at the hospital. Being a big fan of Grey’s Anatomy, I felt like I was in one of their episodes when the doctors came to do their rounds. Oh, and gaining a couple of inches wasn’t so bad either.
I went home on July 13th with a new appreciation for those around me. I was so grateful to be able to fight my battles with the best nurses, doctors, and family a girl could ask for. The nurses at CHOC did everything they could to help me be the most comfortable I could be, my doctors were always trying to find the best treatment options, and my family was so supportive. My sister would spend almost every night with me, and if it wasn’t my sister then it was my mom or dad. I was never alone, and I truly could not have won this war without them.
